Re: Please help and visit my site

Ed wrote:

> First, the clinician must make a personal judgment as to whether patients
> are accurately relating their symptoms--both those that they admit to and
> those that they deny. CFS is an illness defined only by symptoms. Thus, an
> occasional patient seeking secondary gain may fabricate a "perfect story"
> for CFS.

I wish that were the case. I'm sure anyone could make out they have a
particular condition if they read up on it enough. At the end of the
day though, there's no real way I can prove that I have it (although I
have got a test sheet showing an abnormality in my mitochondrial
function!) but not everyone in this world is a con.

> No treatment has been proved to benefit patients with CFS in large
> randomized controlled trials that have been replicated by other
> investigators in other populations of patients.

Yes, that is unfortunately the case.. when you have a condition like
this, though, you either sit down and accept the doctor's advice that
theres nothing you can do about it, or you try things yourself.. some
sufferers do get benefits from different things and it's always
possible someone might stumble across a "cure", so you have to keep
trying.

Regards
Sian